Update

Kian is now 9 and a half years old and growing like a weed. He's still developmentally delayed which with the chromosome micro-deletion is not really a surprise. He's one of the happiest kids I know. I love him dearly. He's my sidekick and majority of the time you won't see one of us without the other. He does okay shopping for very very short periods of time. I usually try to leave him home because I never know if he's just going to have a full blown meltdown or not. That is what makes the SPD (Sensory Processing Disorder) so tough, you never really know if you are facing a meltdown or not when you go into stores and such. And it really is like a computer crashing for these little guys. We have been lucky that it has been at least a year since his last Grand Mal seizure. He has the Petite Mal seizures frequently though and often in clusters. In talking with the neurologists at Doernbecher, I have found out that the Petite Mal seizures are not the ones that are dangerous. They won't cause things like brain damage and such. Kian is 4'4" tall and weighs about 96 pounds. He is growing by leaps and bounds and I fully expect him to outgrow me height wise in a year or two. He loves school and is in about the best school district he can be in for special needs kiddos. Now if we can keep him well. The bad thing is that kids like Kian usually are more susceptible to things. His immune system seems to really suck. He had his tonsils and adenoids removed March 8th of this year which has helped immensely. He still does snore some and get stuffed up but not nearly as bad as it was prior to the surgery. All allergy testing came up negative which we still suspect he does have allergies.